Update on Frances

I was educated on Sunday on some more help that the school *should* be giving us...because Frances can't write on some days, her grades are falling. Most of her teachers are VERY helpful. One, however, considers ANY help to be cheating. Huh? How can accommodating a disability be cheating? Ahem.

So, I was educated. Informed that the schools have LOTS of extra laptops that can be loaned to Frances for her to take notes, take tests, etc.

And I called the school to talk to the nurse, since she seems to be the one that handles anything to do with accommodating students with injuries or disabilities. I talked with the nurse's assistant, who was very knowledgeable of the teacher who is the least helpful/most hindering...hmmm...maybe this is not the first time this has happened?

I haven't heard anything back yet. I will call again tomorrow.

Friday is Frances' appointment with the neurologist. I got the packet from them in the mail, and was both encouraged and overwhelmed. They want details about her monthly development as a child...what month did she sit up? what month did she stand? what month did she say dada? Oh, boy. The encouraging part was that they actually asked these questions...the other neuro....not so much...

I pulled out the baby books. HA! It might have been a good idea to write all of that stuff down, after all........so the neurologist gets "no remembered delays."

I have been talking some more with the physical therapist, who is writing up a report for us to take to the appointment. Her research is coming up empty with anything related to the spine as the cause. It is looking more and more like a CENTRAL nervous system problem, i.e. brain or brain stem. Mom is getting more and more scared....and anxious for the appointment.

Frances is just upset that she's going to have to be out of school for the whole day. Yeah, my kids LOVE school....they're cool that way!!

So please, keep praying. Again, we know God's got this. He has a plan. I just wish I knew what it was right now....because the unknownness of this is killing me. Thank you for your encouraging words, and your prayers...they sustain me....