Tuesday, May 18, 2010

Update on Frances

I was educated on Sunday on some more help that the school *should* be giving us...because Frances can't write on some days, her grades are falling. Most of her teachers are VERY helpful. One, however, considers ANY help to be cheating. Huh? How can accommodating a disability be cheating? Ahem.

So, I was educated. Informed that the schools have LOTS of extra laptops that can be loaned to Frances for her to take notes, take tests, etc.

And I called the school to talk to the nurse, since she seems to be the one that handles anything to do with accommodating students with injuries or disabilities. I talked with the nurse's assistant, who was very knowledgeable of the teacher who is the least helpful/most hindering...hmmm...maybe this is not the first time this has happened?

I haven't heard anything back yet. I will call again tomorrow.

Friday is Frances' appointment with the neurologist. I got the packet from them in the mail, and was both encouraged and overwhelmed. They want details about her monthly development as a child...what month did she sit up? what month did she stand? what month did she say dada? Oh, boy. The encouraging part was that they actually asked these questions...the other neuro....not so much...

I pulled out the baby books. HA! It might have been a good idea to write all of that stuff down, after all........so the neurologist gets "no remembered delays."

I have been talking some more with the physical therapist, who is writing up a report for us to take to the appointment. Her research is coming up empty with anything related to the spine as the cause. It is looking more and more like a CENTRAL nervous system problem, i.e. brain or brain stem. Mom is getting more and more scared....and anxious for the appointment.

Frances is just upset that she's going to have to be out of school for the whole day. Yeah, my kids LOVE school....they're cool that way!!

So please, keep praying. Again, we know God's got this. He has a plan. I just wish I knew what it was right now....because the unknownness of this is killing me. Thank you for your encouraging words, and your prayers...they sustain me....

5 comments:

Marcie said...

Get ready to be giddy...HI. Continued prayers for all of you in this. You go, Mom...battle for your child...make sure she gets the best of the best....love you all.

Leigh Phaneuf said...

I know how frustrating this can all be. Knowing that God is in control is the first step. Remember that He gifted you with the heart of a mother and the instinct that comes with it. If you don't fight for Frances, she has no one to. Use all of the heart, common sense and love that God has given to make all of the decisions that lie ahead. Every mom should be as dedicated as you! Praying for you and Frances.

Tara Anderson said...

Laura, we're still praying for Frances...and the rest of your family...as you try to get this all figured out! Love you!!!

KC said...

Will be keepng Frances and you all in my prayers.. Let us know how it goes tomorrow. (((HUGS)))

Knitted_in_the_Womb said...

When I was in college I "helped" a blind student in chemistry lab. I followed his instructions on how to conduct labs--letting him do as much himself as he could. I also would read his tests to him, and write down the answers he told me (which was difficult to do when I knew he was giving the wrong answer...but it was what I needed to do!).

Somehow *that* was not considered cheating. I would think that your daughter should get similar accommodations.